How can I help ensure others have the same options that I have?

Share your experiences

  • Are you like Evan and on top of your hemophilia?
  • Do you like to stay informed about the latest developments in hemophilia and what you could expect from your treatments?
  • Let others know!


Patients with hemophilia A can sometimes end up sticking with a treatment that isn’t working well for them. They are reluctant to bother their doctor, or they don’t know yet what their options are.


There are many people with hemophilia A who are less confident when it comes to seeking out new therapies or raising concerns with their doctor.

If you think you could help and support other people with hemophilia A take a look at This is an information hub offering a range of resources and advice for people interested in becoming advocates and leaders within the hemophilia community.