How can I help ensure others have the same options that I have?

Share your experiences

  • Are you like Evan and on top of your hemophilia?
  • Do you like to stay informed about the latest developments in hemophilia and what you could expect from your treatments?
  • Let others know!

 

Patients with hemophilia A can sometimes end up sticking with a treatment that isn’t working well for them. They are reluctant to bother their doctor, or they don’t know yet what their options are.

 

There are many people with hemophilia A who are less confident when it comes to seeking out new therapies or raising concerns with their doctor.

 

Frankly.net

If you think you could help and support other people with hemophilia A take a look at Frankly.net This is an information hub offering a range of resources and advice for people interested in becoming advocates and leaders within the hemophilia community.